The German fibromyalgia consumer reports – a cross-sectional survey
Identifieur interne : 000181 ( Main/Exploration ); précédent : 000180; suivant : 000182The German fibromyalgia consumer reports – a cross-sectional survey
Auteurs : Winfried H User [Allemagne] ; Eva Jung [Allemagne] ; Brigitte Erbslöh-Möller [Allemagne] ; Mechthild Gesmann [Allemagne] ; Hedi Kühn-Becker [Allemagne] ; Franz Petermann [Allemagne] ; Jost Langhorst [Allemagne] ; Reinhard Thoma [Allemagne] ; Thomas Weiss [Allemagne] ; Frederick Wolfe [États-Unis] ; Andreas Winkelmann [Allemagne]Source :
- BMC Musculoskeletal Disorders [ 1471-2474 ] ; 2012.
Abstract
Consumer surveys provide information on effectiveness and side effects of medical interventions in routine clinical care. A report of fibromyalgia syndrome (FMS) consumers has not been carried out in Europe.
The study was carried out from November 2010 to April 2011. Participants diagnosed with FMS rated the effectiveness and side effects of pharmacological and non-pharmacological FMS interventions on a 0 to 10 scale, with 10 being most efficacious (harmful). The questionnaire was distributed by the German League for people with Arthritis and Rheumatism and the German Fibromyalgia Association to their members and to all consecutive FMS patients of nine clinical centers of different levels of care.
1661 questionnaires (95% women, mean age 54 years, mean duration since FMS diagnosis 6.8 years) were analysed. The most frequently used therapies were self-management strategies, prescription pain medication and aerobic exercise. The highest average effectiveness was attributed to whole body and local warmth therapies, thermal bathes, FMS education and resting. The highest average side effects were attributed to strong opioids, local cold therapy, gamma-amino-butyric acid analogues (pregabalin and gabapentin), tramadol and opioid transdermal systems.
The German fibromyalgia consumer reports highlight the importance of non-pharmcological therapies in the long-term management of FMS, and challenges the strong recommendations for drug therapies given by FMS-guidelines.
Url:
DOI: 10.1186/1471-2474-13-74
PubMed: 22607517
PubMed Central: 3444387
Affiliations:
- Allemagne, États-Unis
- Bade-Wurtemberg, Bavière, Brême (Land), District de Haute-Bavière, District de Karlsruhe, Kansas, Sarre (Land)
- Brême, Mannheim, Munich, Sarrebruck
- Université Louis-et-Maximilien de Munich, Université technique de Munich
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xml:lang="fr">Allemagne</country><wicri:regionArea>Rheumatology Office, Neunkirchen, D-66538</wicri:regionArea><wicri:noRegion>66538</wicri:noRegion><wicri:noRegion>66538</wicri:noRegion><wicri:noRegion>D-66538</wicri:noRegion></affiliation></author><author><name sortKey="Gesmann, Mechthild" sort="Gesmann, Mechthild" uniqKey="Gesmann M" first="Mechthild" last="Gesmann">Mechthild Gesmann</name><affiliation wicri:level="1"><nlm:aff id="I4">Psychosomatic medicine and pain therapy office, Herford, D- 32049, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Psychosomatic medicine and pain therapy office, Herford, D- 32049</wicri:regionArea><wicri:noRegion>32049</wicri:noRegion><wicri:noRegion>32049</wicri:noRegion><wicri:noRegion>D- 32049</wicri:noRegion></affiliation></author><author><name sortKey="Kuhn Becker, Hedi" sort="Kuhn Becker, Hedi" uniqKey="Kuhn Becker H" first="Hedi" last="Kühn-Becker">Hedi Kühn-Becker</name><affiliation wicri:level="1"><nlm:aff id="I5">Psychosomatic medicine and pain therapy office, Zweibrücken, D-66432, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Psychosomatic medicine and pain therapy office, Zweibrücken, D-66432</wicri:regionArea><wicri:noRegion>66432</wicri:noRegion><wicri:noRegion>66432</wicri:noRegion><wicri:noRegion>D-66432</wicri:noRegion></affiliation></author><author><name sortKey="Petermann, Franz" sort="Petermann, Franz" uniqKey="Petermann F" first="Franz" last="Petermann">Franz Petermann</name><affiliation wicri:level="3"><nlm:aff id="I6">Centre of clinical psychology and rehabilitation, Universität Bremen, Bremen, D- 28359, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Centre of clinical psychology and rehabilitation, Universität Bremen, Bremen, D- 28359</wicri:regionArea><placeName><region type="land" nuts="3">Brême (Land)</region><settlement type="city">Brême</settlement></placeName></affiliation></author><author><name sortKey="Langhorst, Jost" sort="Langhorst, Jost" uniqKey="Langhorst J" first="Jost" last="Langhorst">Jost Langhorst</name><affiliation wicri:level="1"><nlm:aff id="I7">Department Internal Medicine V (Integrative Medicine), Kliniken Essen-Mitte, Universität Essen-Duisburg, Essen, D-45726, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department Internal Medicine V (Integrative Medicine), Kliniken Essen-Mitte, Universität Essen-Duisburg, Essen, D-45726</wicri:regionArea><wicri:noRegion>45726</wicri:noRegion><wicri:noRegion>45726</wicri:noRegion><wicri:noRegion>D-45726</wicri:noRegion></affiliation></author><author><name sortKey="Thoma, Reinhard" sort="Thoma, Reinhard" uniqKey="Thoma R" first="Reinhard" last="Thoma">Reinhard Thoma</name><affiliation wicri:level="3"><nlm:aff id="I8">Algesiologikum München, München, 80799, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Algesiologikum München, München, 80799</wicri:regionArea><placeName><region type="land" nuts="1">Bavière</region><region type="district" nuts="2">District de Haute-Bavière</region><settlement type="city">Munich</settlement></placeName></affiliation></author><author><name sortKey="Weiss, Thomas" sort="Weiss, Thomas" uniqKey="Weiss T" first="Thomas" last="Weiss">Thomas Weiss</name><affiliation wicri:level="3"><nlm:aff id="I9">Day clinic Mannheim Dr. Weiss, Mannheim, D-68161, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Day clinic Mannheim Dr. Weiss, Mannheim, D-68161</wicri:regionArea><placeName><region type="land" nuts="1">Bade-Wurtemberg</region><region type="district" nuts="2">District de Karlsruhe</region><settlement type="city">Mannheim</settlement></placeName></affiliation></author><author><name sortKey="Wolfe, Frederick" sort="Wolfe, Frederick" uniqKey="Wolfe F" first="Frederick" last="Wolfe">Frederick Wolfe</name><affiliation wicri:level="2"><nlm:aff id="I10">National Data Bank for Rheumatic Diseases, Wichita, Kansas and University of Kansas School of Medicine, Wichita, KS, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>National Data Bank for Rheumatic Diseases, Wichita, Kansas and University of Kansas School of Medicine, Wichita, KS</wicri:regionArea><placeName><region type="state">Kansas</region></placeName></affiliation></author><author><name sortKey="Winkelmann, Andreas" sort="Winkelmann, Andreas" uniqKey="Winkelmann A" first="Andreas" last="Winkelmann">Andreas Winkelmann</name><affiliation wicri:level="4"><nlm:aff id="I11">Department of Physical Medicine and Rehabilitation, Klinikum der, Universität München, München, D-80336, Germany</nlm:aff><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department of Physical Medicine and Rehabilitation, Klinikum der, Universität München, München, D-80336</wicri:regionArea><placeName><region type="land" nuts="1">Bavière</region><region type="district" nuts="2">District de Haute-Bavière</region><settlement type="city">Munich</settlement></placeName><orgName type="university">Université Louis-et-Maximilien de Munich</orgName></affiliation></author></analytic><series><title level="j">BMC Musculoskeletal Disorders</title><idno type="eISSN">1471-2474</idno><imprint><date when="2012">2012</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Background</title><p>Consumer surveys provide information on effectiveness and side effects of medical interventions in routine clinical care. A report of fibromyalgia syndrome (FMS) consumers has not been carried out in Europe.</p></sec><sec><title>Methods</title><p>The study was carried out from November 2010 to April 2011. Participants diagnosed with FMS rated the effectiveness and side effects of pharmacological and non-pharmacological FMS interventions on a 0 to 10 scale, with 10 being most efficacious (harmful). The questionnaire was distributed by the German League for people with Arthritis and Rheumatism and the German Fibromyalgia Association to their members and to all consecutive FMS patients of nine clinical centers of different levels of care.</p></sec><sec><title>Results</title><p>1661 questionnaires (95% women, mean age 54 years, mean duration since FMS diagnosis 6.8 years) were analysed. The most frequently used therapies were self-management strategies, prescription pain medication and aerobic exercise. The highest average effectiveness was attributed to whole body and local warmth therapies, thermal bathes, FMS education and resting. The highest average side effects were attributed to strong opioids, local cold therapy, gamma-amino-butyric acid analogues (pregabalin and gabapentin), tramadol and opioid transdermal systems.</p></sec><sec><title>Conclusion</title><p>The German fibromyalgia consumer reports highlight the importance of non-pharmcological therapies in the long-term management of FMS, and challenges the strong recommendations for drug therapies given by FMS-guidelines.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Wolfe, F" uniqKey="Wolfe F">F Wolfe</name></author><author><name sortKey="Clauw, Dj" uniqKey="Clauw D">DJ Clauw</name></author><author><name sortKey="Fitzcharles, Ma" uniqKey="Fitzcharles M">MA Fitzcharles</name></author><author><name sortKey="Goldenberg, Dl" uniqKey="Goldenberg D">DL Goldenberg</name></author><author><name sortKey="Katz, Rs" uniqKey="Katz R">RS Katz</name></author><author><name sortKey="Mease, P" uniqKey="Mease P">P Mease</name></author><author><name sortKey="Russell, As" uniqKey="Russell A">AS Russell</name></author><author><name sortKey="Russell, Ij" uniqKey="Russell I">IJ Russell</name></author><author><name sortKey="Winfield, Jb" uniqKey="Winfield J">JB Winfield</name></author><author><name sortKey="Yunus, Mb" uniqKey="Yunus M">MB Yunus</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="H User, W" uniqKey="H User W">W Häuser</name></author><author><name sortKey="Zimmer, C" uniqKey="Zimmer C">C Zimmer</name></author><author><name sortKey="Felde, E" uniqKey="Felde E">E Felde</name></author><author><name sortKey="Kollner, V" uniqKey="Kollner V">V Köllner</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Choy, E" uniqKey="Choy E">E Choy</name></author><author><name sortKey="Perrot, S" uniqKey="Perrot S">S Perrot</name></author><author><name sortKey="Leon, T" uniqKey="Leon T">T Leon</name></author><author><name sortKey="Kaplan, J" uniqKey="Kaplan J">J Kaplan</name></author><author><name sortKey="Petersel, D" uniqKey="Petersel D">D Petersel</name></author><author><name sortKey="Ginovker, A" uniqKey="Ginovker A">A Ginovker</name></author><author><name sortKey="Kramer, E" uniqKey="Kramer E">E Kramer</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Winkelmann, A" uniqKey="Winkelmann A">A Winkelmann</name></author><author><name sortKey="Perrot, S" uniqKey="Perrot S">S Perrot</name></author><author><name sortKey="Schaefer, C" uniqKey="Schaefer C">C Schaefer</name></author><author><name sortKey="Ryan, K" uniqKey="Ryan K">K Ryan</name></author><author><name sortKey="Chandran, A" uniqKey="Chandran A">A Chandran</name></author><author><name sortKey="Sadosky, A" uniqKey="Sadosky A">A Sadosky</name></author><author><name sortKey="Zlateva, G" uniqKey="Zlateva G">G Zlateva</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Branco, Jc" uniqKey="Branco J">JC Branco</name></author><author><name sortKey="Bannwarth, B" uniqKey="Bannwarth B">B Bannwarth</name></author><author><name sortKey="Failde, I" uniqKey="Failde I">I Failde</name></author><author><name sortKey="Abello Carbonell, J" uniqKey="Abello Carbonell J">J Abello Carbonell</name></author><author><name sortKey="Blotman, F" uniqKey="Blotman F">F Blotman</name></author><author><name sortKey="Spaeth, M" uniqKey="Spaeth M">M Spaeth</name></author><author><name sortKey="Saraiva, F" uniqKey="Saraiva F">F Saraiva</name></author><author><name sortKey="Nacci, F" uniqKey="Nacci F">F Nacci</name></author><author><name sortKey="Thomas, E" uniqKey="Thomas E">E Thomas</name></author><author><name sortKey="Caubere, Jp" uniqKey="Caubere J">JP Caubère</name></author><author><name sortKey="Le Lay, K" uniqKey="Le Lay K">K Le Lay</name></author><author><name sortKey="Taieb, C" uniqKey="Taieb C">C Taieb</name></author><author><name sortKey="Matucci Cerinic, M" uniqKey="Matucci Cerinic M">M 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Mease</name></author><author><name sortKey="Russell, As" uniqKey="Russell A">AS Russell</name></author><author><name sortKey="Russell, Ij" uniqKey="Russell I">IJ Russell</name></author><author><name sortKey="Winfield, Jb" uniqKey="Winfield J">JB Winfield</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bradley, La" uniqKey="Bradley L">LA Bradley</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Lempp, Hk" uniqKey="Lempp H">HK Lempp</name></author><author><name sortKey="Hatch, Sl" uniqKey="Hatch S">SL Hatch</name></author><author><name sortKey="Carville, Sf" uniqKey="Carville S">SF Carville</name></author><author><name sortKey="Choy, Eh" uniqKey="Choy E">EH Choy</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Burckhardt, Cs" uniqKey="Burckhardt C">CS Burckhardt</name></author><author><name sortKey="Goldenberg, D" uniqKey="Goldenberg D">D Goldenberg</name></author><author><name sortKey="Crofford, L" uniqKey="Crofford L">L Crofford</name></author><author><name sortKey="Gerwin, R" uniqKey="Gerwin R">R Gerwin</name></author><author><name sortKey="Gowans, S" uniqKey="Gowans S">S Gowans</name></author><author><name sortKey="Kackson, K" uniqKey="Kackson K">K Kackson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Carville, Sf" uniqKey="Carville S">SF Carville</name></author><author><name sortKey="Arendt Nielsen, S" uniqKey="Arendt Nielsen S">S Arendt-Nielsen</name></author><author><name sortKey="Bliddal, H" uniqKey="Bliddal H">H Bliddal</name></author><author><name sortKey="Blotman, F" uniqKey="Blotman F">F Blotman</name></author><author><name sortKey="Branco, Jc" uniqKey="Branco J">JC Branco</name></author><author><name sortKey="Buskila, D" uniqKey="Buskila D">D Buskila</name></author><author><name sortKey="Da Silva, Ja" uniqKey="Da Silva J">JA Da Silva</name></author><author><name sortKey="Danneskiold Sams E, B" uniqKey="Danneskiold Sams E B">B Danneskiold-Samsøe</name></author><author><name sortKey="Dincer, F" uniqKey="Dincer F">F Dincer</name></author><author><name sortKey="Henriksson, C" uniqKey="Henriksson C">C Henriksson</name></author><author><name sortKey="Henriksson, Kg" uniqKey="Henriksson K">KG Henriksson</name></author><author><name sortKey="Kosek, E" uniqKey="Kosek E">E Kosek</name></author><author><name sortKey="Longley, K" uniqKey="Longley K">K Longley</name></author><author><name sortKey="Mccarthy, Gm" uniqKey="Mccarthy G">GM McCarthy</name></author><author><name sortKey="Perrot, S" uniqKey="Perrot S">S Perrot</name></author><author><name sortKey="Puszczewicz, M" uniqKey="Puszczewicz M">M Puszczewicz</name></author><author><name sortKey="Sarzi Puttini, P" uniqKey="Sarzi Puttini P">P Sarzi-Puttini</name></author><author><name sortKey="Silman, A" uniqKey="Silman A">A Silman</name></author><author><name sortKey="Sp Th, M" uniqKey="Sp Th M">M Späth</name></author><author><name sortKey="Choy, Eh" uniqKey="Choy E">EH Choy</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="H User, W" uniqKey="H User W">W Häuser</name></author><author><name sortKey="Eich, W" uniqKey="Eich W">W Eich</name></author><author><name sortKey="Herrmann, M" uniqKey="Herrmann M">M Herrmann</name></author><author><name sortKey="Nutzinger, Do" uniqKey="Nutzinger D">DO Nutzinger</name></author><author><name sortKey="Schiltenwolf, M" uniqKey="Schiltenwolf M">M Schiltenwolf</name></author><author><name sortKey="Henningsen, P" uniqKey="Henningsen P">P Henningsen</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Seligman, M" uniqKey="Seligman M">M Seligman</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bennett, Rm" uniqKey="Bennett R">RM Bennett</name></author><author><name sortKey="Jones, J" uniqKey="Jones J">J Jones</name></author><author><name sortKey="Turk, Dc" uniqKey="Turk D">DC Turk</name></author><author><name sortKey="Russell, Ij" uniqKey="Russell I">IJ Russell</name></author><author><name sortKey="Matallana, L" uniqKey="Matallana L">L Matallana</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Goldenberg, Dl" uniqKey="Goldenberg D">DL Goldenberg</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="H User, W" uniqKey="H User W">W Häuser</name></author><author><name sortKey="Hayo, S" uniqKey="Hayo S">S Hayo</name></author><author><name sortKey="Biewer, W" uniqKey="Biewer W">W Biewer</name></author><author><name sortKey="Gesmann, M" uniqKey="Gesmann M">M Gesmann</name></author><author><name sortKey="Kuhn Becker, H" uniqKey="Kuhn Becker H">H Kühn-Becker</name></author><author><name sortKey="Petzke, F" uniqKey="Petzke F">F Petzke</name></author><author><name sortKey="Von Wilmoswky, H" uniqKey="Von Wilmoswky H">H von Wilmoswky</name></author><author><name sortKey="Langhorst, J" uniqKey="Langhorst J">J Langhorst</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kroenke, K" uniqKey="Kroenke K">K Kroenke</name></author><author><name sortKey="Spitzer, Rl" uniqKey="Spitzer R">RL Spitzer</name></author><author><name sortKey="Jannett, Bw" uniqKey="Jannett B">BW Jannett</name></author><author><name sortKey="Williams, Dsw" uniqKey="Williams D">DSW Williams</name></author><author><name sortKey="Lowe, B" uniqKey="Lowe B">B Löwe</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Lowe, B" uniqKey="Lowe B">B Löwe</name></author><author><name sortKey="Wahl, I" uniqKey="Wahl I">I Wahl</name></author><author><name sortKey="Rose, M" uniqKey="Rose M">M Rose</name></author><author><name sortKey="Spitzer, C" uniqKey="Spitzer C">C Spitzer</name></author><author><name sortKey="Glaesmer, H" uniqKey="Glaesmer H">H Glaesmer</name></author><author><name sortKey="Wingenfeld, K" uniqKey="Wingenfeld K">K Wingenfeld</name></author><author><name sortKey="Schneider, A" uniqKey="Schneider A">A Schneider</name></author><author><name sortKey="Br Hler, E" uniqKey="Br Hler E">E Brähler</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Fuchs Strizek, R" uniqKey="Fuchs Strizek R">R Fuchs-Strizek</name></author><author><name sortKey="Laireiter, Ar" uniqKey="Laireiter A">AR Laireiter</name></author><author><name sortKey="Baumann, U" uniqKey="Baumann U">U Baumann</name></author><author><name sortKey="Hessler, E" uniqKey="Hessler E">E Hessler</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Allemagne</li><li>États-Unis</li></country><region><li>Bade-Wurtemberg</li><li>Bavière</li><li>Brême (Land)</li><li>District de Haute-Bavière</li><li>District de Karlsruhe</li><li>Kansas</li><li>Sarre (Land)</li></region><settlement><li>Brême</li><li>Mannheim</li><li>Munich</li><li>Sarrebruck</li></settlement><orgName><li>Université Louis-et-Maximilien de Munich</li><li>Université technique de Munich</li></orgName></list><tree><country name="Allemagne"><region name="Sarre (Land)"><name sortKey="H User, Winfried" sort="H User, Winfried" uniqKey="H User W" first="Winfried" last="H User">Winfried H User</name></region><name sortKey="Erbsloh Moller, Brigitte" sort="Erbsloh Moller, Brigitte" uniqKey="Erbsloh Moller B" first="Brigitte" last="Erbslöh-Möller">Brigitte Erbslöh-Möller</name><name sortKey="Gesmann, Mechthild" sort="Gesmann, Mechthild" uniqKey="Gesmann M" first="Mechthild" last="Gesmann">Mechthild Gesmann</name><name sortKey="H User, Winfried" sort="H User, Winfried" uniqKey="H User W" first="Winfried" last="H User">Winfried H User</name><name sortKey="Jung, Eva" sort="Jung, Eva" uniqKey="Jung E" first="Eva" last="Jung">Eva Jung</name><name sortKey="Jung, Eva" sort="Jung, Eva" uniqKey="Jung E" first="Eva" last="Jung">Eva Jung</name><name sortKey="Kuhn Becker, Hedi" sort="Kuhn Becker, Hedi" uniqKey="Kuhn Becker H" first="Hedi" last="Kühn-Becker">Hedi Kühn-Becker</name><name sortKey="Langhorst, Jost" sort="Langhorst, Jost" uniqKey="Langhorst J" first="Jost" last="Langhorst">Jost Langhorst</name><name sortKey="Petermann, Franz" sort="Petermann, Franz" uniqKey="Petermann F" first="Franz" last="Petermann">Franz Petermann</name><name sortKey="Thoma, Reinhard" sort="Thoma, Reinhard" uniqKey="Thoma R" first="Reinhard" last="Thoma">Reinhard Thoma</name><name sortKey="Weiss, Thomas" sort="Weiss, Thomas" uniqKey="Weiss T" first="Thomas" last="Weiss">Thomas Weiss</name><name sortKey="Winkelmann, Andreas" sort="Winkelmann, Andreas" uniqKey="Winkelmann A" first="Andreas" last="Winkelmann">Andreas Winkelmann</name></country><country name="États-Unis"><region name="Kansas"><name sortKey="Wolfe, Frederick" sort="Wolfe, Frederick" uniqKey="Wolfe F" first="Frederick" last="Wolfe">Frederick Wolfe</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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